About

Since the summer of 2010, I’ve been traipsing through the perpetually inconsistent landscape of vertigo. I forcibly became a denizen of dizzyland because of damage done to my vestibular nerve by a malicious upper respiratory infection gone bad, leaving me with a permanent case of something called vestibular neuritis. A ghastly two years  from that fateful day, when up ceased to be so… up (I’ve since replaced it with down, or an approximation thereof) I’m finally getting help. Through a specialized intensive therapy clinic in Santa Rosa, CA, USA, vestibular rehabilitation therapy (VRT) and dielectical behavioral therapy (DBT) are my new homeboys and we plan to set things straight. At least relatively so. This blog is the culmination of the inner machinations of my mental ramblings during the nine weeks of therapy and beyond. Welcome. We’re all a little off here.

Vertigo is the conflict between the fear of falling and the desire to fall. -Salman Rushdie

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3 Responses to “About”

  1. Sarah December 28, 2013 at 6:21 pm #

    Hi. I have been dealing with VN for 16 months now. I am still doing VRT, I was curious how are you doing now?
    Thanks-
    Sarah

    • svk28 January 1, 2014 at 3:31 am #

      Hi Sarah,

      It’s been quite some time since I’ve posted on this blog, so thank you for expressing an interest! I am in the 3rd year of living with VN symptoms, and there are definite ups and downs. I continually have to assess limitations and it’s still very difficult for me to accept when my body is telling me no. However, the therapy I do (VRT, rest, moderating diet) does help keep those restrictions limited.

      The last six months have been a bit trying–I did a research program in Michigan for 10 weeks which placed me in a great deal of humidity before I returned to California and began a very difficult (as far as material–I am a mathematics major) semester. The utter lack of “down time” during this past summer severely depleted my energy stores, and it is still showing. So, while I try to remain active, I am much more aware of my body telling me I need rest and allowing myself that necessity without judgement or cynicism.

      That being said, the situation is still frustrating, and I am at the point where I am looking into second opinions for my diagnosis. It’s not so much that I think my diagnosis was wrong or insufficient as it is that anything with the vestibular system is complex and dynamic. Ever time I catch a cold or flu, there is a possibility that my diagnosis needs reassessment and there are many therapies that are in the research and development stages. I am in my mid-20’s, and although, I accept that this is a lifelong condition, I would be remiss if I didn’t continue to keep an open mind to alternative treatments. Acceptance of what is is not the same as giving up hope for a better tomorrow.

      If you are interested in another account of a vestibular rehabilitation story, a book that has been helpful for me to page through is Sue Hickey’s Finding Balance. Although her overall diagnosis is different than mine, her retelling of her experiences as well as thorough documentation of medical treatment timelines and procedures plus tips for those living with vestibular conditions is quite informative.

      Please let me know if you have any other questions! I am considering reviving this blog for myself as much as any other like yourself that may be curious, and it’s helpful for me to know that there are people who gain some benefit from my ramblings!

  2. Sarah January 1, 2014 at 10:28 am #

    Thanks for the reply. I’m curious, how did you get a correct diagnosis? My Dr. did a VNG test and was able to tell by the nystagmus in the eyes that it was my right ear that had the virus, this makes sense because that was the ear that first felt plugged ect, although my left ear had some fullness ect. and, both of my ears still have a bit of popping and crackling. I would say I am about 80% better, I have got a couple colds since this and it doesn’t seem to set

    me back too much, I do notice when I don’t sleep enough it gets worse, the floaty feeling, it has mostly turned into a floaty kind of feeling. I see a different type of Dr. called a functional neurologist, he is very smart and sees people like me all the time, he says there is nothing with this VN that can’t be fixed, just takes time and the right therapy. A website I have found helpful is labrinthitis.org.uk it is 2 people’s stories of healing from this, it is pretty encouraging. Anyhow, I believe my Dr. has helped me so much, and I’ve only been doing doing therpy for 7 months. Feel free to email me for more info.
    Best wishes to you!
    Sarah

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